About Us

The Registry of Kidney Diseases (ROKD) is a clinical quality registry and a registry of rare renal/kidney diseases which collects data from patients with Chronic Kidney Disease (CKD) across a spectrum of specific renal specific diseases and some diseases with renal involvement. Established as a pilot quality registry in the Department of Epidemiology and Preventive Medicine (DEPM), Monash University in 2013 ROKD is now established as fully functional Quality and Rare disease registry which also encompasses a Registry of Glomerulonephritis.

The Registry currently focusses on the following conditions but will expand the number of conditions over time.


• Autosomal Dominant Polycystic Kidney Disease (ADPKD)
• Alports Disease
• C3 Nephropathy
• Focal Glomerular Sclerosis (FGS)
• Membranous Nephropathy
• IgA Disease
• Fibromuscular Dysplasia (FMD)
• Tuberous Sclerosis Complex and Lymphangioleiomyomatosis (TSC/LAM)

This brief video provides some more information about these different kidney diseases and the importance of Chronic Kidney Disease (CKD).

https://www.youtube.com/watch?v=eRk8nppyfIY