Aims

The registry aims to:

  • Collect epidemiologically sound and consistent data across Australia to:
    • Increase the accuracy of estimates of specific renal disease incidence and prevalence;
    • Increase the accuracy of estimates of chronic kidney diesease (CKD) incidence and prevalence;
    • Improve understanding of the phenotypic expression and natural history of disease;
    • Identify factors that predict prognosis and outcomes, particularly in relation to progression to end stage kidney disease (ESKD) (dialysis/transplantation), cardiovascular events or death;
    • Assess current patterns of care and clinical practice;
    • Improve evidence for best practice-based guidelines for patient management;
    • Reduce variation in treatment and improve outcomes as a result of better implementation of evidence-based guidelines.
  • Facilitate awareness and promotion of clinical trials nationally, and potentially facilitate identification and recruitment of eligible volunteers to relevant clinical trials
  • Enable research by providing aggregate, de-identified data to research entities.
  • Promulgate new knowledge to inform best practice and care services.