Data Collected

Epidemiologically sound data will be collected following diagnosis, at six months and then annually. Data will be collected onto a web based data collection form designed specifically for the study. It will record data for each patient in the following categories:

  • Patient identifiers (for follow-up and possible linkage)
  • Demographics
  • Diagnosis Details (biopsy results and laboratory results)
  • Specific disease details (based on diagnosis)
  • Comorbidities and lifestyle factors
  • Treatment (medical therapy)
  • Outcomes (mortality, disease progression, cardiac and other complications)