Benefits of participation
The aim of the Registry of Kidney Diseases (ROKD) is to improve the quality of care provided to people diagnosed with chronic kidney disease (CKD).
Information from the quality registry will be used to monitor care provided, including treatment, complications and outcomes of care. This component of the registry (new cases since 1/1 2014) will ultimately assist renal physicians and other renal health care workers to provide best possible care to CKD patients with relevant conditions associated with CKD and also to help identify any gaps that exist in service provision. Your participation in this registry will be greatly valued. Furthermore, if you have legacy cases (diangosis prior to 1/1/2014) they are suitable for inclusion as part of the rare diseases component of ROKD; including your patient in the registry has potential value in opportunities for future clinical endeavours (interventions/trials) etc.
The following institutions (Principal Investigator) have or will have ethics approval to participate. If you are aligned with one of these institutions, you and your registrars can first of all register to become a user by contacting the project officer as below. For data entry (once registered) use the redcap link.
Alfred Health (Prof Rowan Walker)
St Vincent’s (A/Prof David Goodman)
Ballarat Base Hospital (Dr John Richmond)
Bendigo Hospital (A/Prof Chris Holmes)
Western Health (Dr Craig Nelson)
Eastern Health (Dr Darren Lee)
Epworth Hospital (A/Prof Ian Fraser)
Barwon Health (Dr Christine Somerville)
Northern Hospital (Dr David Langsford)
Peninsula Health (Dr Kim Wong)
Monash Children's Hospital (Dr Amelia Le Page)
Monash Health (Prof Peter Kerr)
Royal Melbourne Hospital (Prof Steve Holt)
Austin Hospital (Dr Matthew Davies)
Royal Children's hospital (Dr Amanda Walker)
Goulburn Valley Health _ Shepparton (Dr Peter McClelland)
Cabrini Hospital (Dr Kathryn Wiggins)
Project Manager Ms Claire Galbraith Alfred Hospital/Monash University (03) 90768845
Medical Resource Dr Kristeen Barker Alfred Hospital/Monash University (03) 90762580