Why is there a kidney disease registry?

The aim of the Registry of Kidney Diseases (ROKD) is to improve the quality of care provided to people with particular kidney conditions that have been diagnosed and will potentially lead to the development of or are already associated with a diagnosis of chronic kidney disease (CKD). Information from the registry will be used to monitor care provided, including treatment, complications and outcomes of care. The registry will help doctors, nurses and other kidney health care  workers to provide best possible care to patients with condtions causing CKD and also to help identify any gaps that exist in service provision.

People diagnosed with certain condtions associated with CKD will have data collected by the ROKD hosted by the Department of Epidemiology and Preventive Medicine (DEPM) at Monash University. Of particular focus (but certainly not exclusively) will be the collection of data from individuals diagnosed after 1st Januay 2014.

This brief video provides some information as to why there is a Registry of Kidney Diseases