Participation and Consent

The registry is what is called an “opt-out” registry, which means that the details of you (or your relative with chronic kidney disease (CKD)) will automatically be included in the registry unless you inform us that you (or your relative) do not wish to participate. Your (or your relatives) participation is voluntary and you (or your relative) may withdraw from the registry at any time.

If you do not wish to take part, you (or your relative) can withdraw from the registry at any time. If you do not let us know within two weeks, we will assume that you are happy for us to collect your information and use in future research approved by a Human Research Ethics Committee.  Your decision to take part in the registry or not will not in any way affect your relationship with your treating specialist/hospital.