Registry of Kidney Diseases

Welcome to the Registry of Kidney Diseases website.
The Registry of Kidney Diseases (ROKD) is a clinical quality registry and registry of rarer kidney diseases which collects data from patients with Chronic Kidney Disease (CKD) across a spectrum of several specific renal diseases including some other conditions with renal involvement. The primary objective of the ROKD is to identify patients at earlier stages of CKD, monitor the course of their disease progression, and assess the nautre and quality of care provided to these patients in their medical management. ROKD was established as a pilot registry in the Department of Epidemiology and Preventive Medicine (DEPM), Monash University in 2013 and is now established as functional quality and rare disease registry. It also encompasses a Registry of Glomerulonephritis.

_______________________________________________________________________________________________________________________________________________________________________________________Outline of ROKD

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• Autosomal Dominant Polycystic Kidney Disease (ADPKD)
• Alports Disease
• C3 Nephropathy
• Focal Glomerular Sclerosis (FGS)
• Membranous Nephropathy
• IgA Disease
• Fibromuscular Dysplasia (FMD)
• Tuberous Sclerosis Complex and Lymphangioleiomyomatosis (TSC/LAM)