What is a registry?
What are Clinical Registries?
Clinical registries provide measurement and benchmarking of high significance clinical procedures. They also may be established to monitor the safety of new devices, drugs and surgical procedures. They work by collecting an identical minimum dataset from patients at participating hospitals. Outcomes reported by registries are measured in a systematic way using identical definitions across all sites.
How do clinical registries work?
Clinical quality registries are a particular subset of registries which focus on improving the safety and quality of healthcare by providing high quality and clinically relevant data (outcomes) back to clinicians to drive quality improvement.
High quality data
Clinical registries pay meticulous attention to collecting complete, accurate and epidemiologically sound data. This means that results generated from clinical registries are respected by clinicians and stimulate action when outliers are identified.
Clinically relevant data
Clinicians play a pivotal role in governing the registry. Working with epidemiologists, clinical leaders identify indicators to be reported by the registry. These indicators must reflect what should be happening in clinical practice (gold standard practice), be capable of being collected in a standardised manner and highlight an important issue which is amenable to change by clinicians.